Evadney’s Corner

A Message from the Owner

Hello Everyone,

It’s incredibly important to me that my agents and I support families facing the difficult journey of a CML or AML diagnosis. Having experienced this first-hand, I understand the challenges that arise from diagnosis through treatment and back again.

We recognize that our clients rely on us to provide clear, concise options to help manage the high costs of care. This section of our website is dedicated to my late mother and serves as a resource for those navigating this tough battle.

As the saying goes, “Each one teaches one.” We will continuously update this page to ensure that our clients afflicted with these conditions have access to the support they need.

We’ve included a selection of resources, clinical trials, and books that can help you manage both the emotional and financial aspects of cancer care.

Thank you for visiting, and please feel free to reach out if you need assistance or more information.

Warm regards,

GH
Orion Financial Services LLC

Books to help you navigate and cope. 

Cancer and your finances.

Resource List for AML and CML Related Cancers

Here’s a comprehensive list of organizations and resources that offer support, financial assistance, and valuable information for individuals and families affected by Acute Myeloid Leukemia (AML) and Chronic Myeloid Leukemia (CML):

  1. Leukemia & Lymphoma Society (LLS)

    • URL: www.lls.org
    • Introduction: LLS provides resources, support groups, and financial assistance programs for patients and families battling blood cancers, including AML and CML.
  2. Patient Assistance NOW (PANO)

    • URL: www.novartisoncology.com
    • Introduction: This program assists uninsured patients in accessing Gleevec and Tasigna (Imatinib/Nilotinib) to help manage treatment costs.
  3. HealthWell Foundation

    • URL: www.healthwellfoundation.org
    • Introduction: HealthWell helps insured patients cover out-of-pocket costs like co-payments and premiums for necessary medical treatments.
  4. Joe’s House

    • URL: www.joeshouse.org
    • Introduction: Joe’s House provides information on lodging options near hospitals and treatment centers, including details on amenities and rates.
  5. Destination Access (Bristol Myers-Squibb)

    • URL: www.bms.com
    • Introduction: This program assists patients using Sprycel (Dasatinib) and offers resources for navigating treatment.
  6. Financial Assistance from Pfizer

    • URL: www.pfizer.com
    • Introduction: Pfizer provides assistance for patients using Bosulif (Bosutinib), helping to manage the costs of treatment.
  7. ARIAD PASS (Patient Access & Support Services)

    • URL: www.ariad.com
    • Introduction: This program supports patients using Iclusig (Ponatinib), focusing on medication access and financial assistance.
  8. Patient Services, Inc. (PSI)

    • URL: www.patientservicesinc.org
    • Introduction: PSI offers non-profit support for CML families, assisting with premium and co-payment assistance.
  9. National Patient Travel Center

    • URL: www.npstravel.org
    • Introduction: This organization provides information about charitable air transportation options for patients needing to travel for medical care.
  10. NeedyMeds

    • URL: www.needymeds.org
    • Introduction: NeedyMeds is a hub for medication assistance and links to Patient Assistance Programs (PAPs).
  11. Partnership for Prescription Assistance (PPARX)

    • URL: www.pparx.org
    • Introduction: PPARX connects patients with various medication assistance programs and resources to help access necessary prescriptions.
  12. Patient Advocate Foundation

    • URL: www.patientadvocate.org
    • Introduction: This foundation provides advocacy and support services to resolve access to care and medical debt issues.
  13. RxAssist

    • URL: www.rxassist.org
    • Introduction: RxAssist offers resources for medication assistance and information about Patient Assistance Programs.
  14. LLS Copayment Assistance

    • URL: www.lls.org
    • Introduction: This program from LLS provides copayment assistance to ensure patients can afford their treatments.
  15. Susan Lang Pay-It-Forward Patient Travel Assistance Program (LLS)

    • URL: www.lls.org
    • Introduction: This initiative helps cover travel costs related to treatment for patients with blood cancers.
  16. Cure AML

    • URL: www.cureaml.org
    • Introduction: This organization focuses on raising awareness and funding for research in AML, offering resources for patients and families.
  17. The Leukemia & Lymphoma Society’s Information Resource Center

    • URL: www.lls.org/information
    • Introduction: Provides comprehensive information about treatment options, clinical trials, and support resources.

Current Clinical Trials

  1. ClinicalTrials.gov

    • URL: www.clinicaltrials.gov
    • Introduction: A database of privately and publicly funded clinical studies conducted around the world, including trials for AML and CML treatments.
  2. The Leukemia & Lymphoma Society Clinical Trial Finder

    • URL: www.lls.org/clinical-trials
    • Introduction: LLS provides a tool to search for clinical trials based on specific criteria such as diagnosis, location, and treatment type.
  3. CureSearch

    • URL: www.curesearch.org
    • Introduction: CureSearch provides information on clinical trials for pediatric cancers, including leukemia, and offers resources for families.
  4. Cancer Research UK

    • URL: www.cancerresearchuk.org
    • Introduction: Offers a comprehensive database of cancer clinical trials, including those focused on AML and CML.