Evadney’s Corner

A Message from the Owner

Hello Everyone,

It’s incredibly important to me that my agents and I support families facing the difficult journey of a CML or AML diagnosis. Having experienced this first-hand, I understand the challenges that arise from diagnosis through treatment and back again.

We recognize that our clients rely on us to provide clear, concise options to help manage the high costs of care. This section of our website is dedicated to my mother and serves as a resource for those navigating this tough battle. As the saying goes, “Each one, teaches one.” We will continuously update this page to ensure that our clients afflicted with these conditions have access to the support they need.

A diagnosis of AML or CML is the beginning of a journey, not the end of the road.

Knowledge, support, and compassion are powerful tools—whether you’re seeking treatment, connecting with survivors, or planning for the future. You’re not alone.

Thank you for visiting, and please feel free to reach out if you need assistance or more information.

Warm regards,

GH


What Are AML & CML?

  • AML is a fast-growing cancer of the blood and bone marrow that typically requires immediate treatment.

  • CML is a slower-growing form of leukemia often managed with long-term targeted therapies.

Both require specialized care, and the good news is there are numerous organizations and tools ready to support you every step of the way.


National Foundations & Support Networks

Leukemia & Lymphoma Society (LLS)

www.lls.org

Offers education, support groups, live chat with specialists, and financial assistance for medications, copays, and travel.

LLS Copayment Assistance: www.lls.org/copay

Information Resource Center: www.lls.org/information

Clinical Trial Finder: www.lls.org/clinical-trials


Cure AML

www.cureaml.org

Focused on AML awareness, research, and funding. Offers patient-centered education and links to trials and treatment updates.


Financial & Medication Assistance

Patient Assistance NOW (PANO) – Novartis

www.novartisoncology.com

Helps uninsured patients access Gleevec and Tasigna for CML through financial support and medication access.

HealthWell Foundation

www.healthwellfoundation.org

Provides grants to cover co-pays, premiums, and out-of-pocket costs for insured patients with serious diseases, including blood cancers.

Pfizer Oncology Together

www.pfizer.com

Support program for Bosulif (Bosutinib) users. Helps manage treatment costs and insurance navigation.

Destination Access – Bristol Myers Squibb

www.bms.com

Patient support for Sprycel (Dasatinib) including help with insurance verification and cost sharing.

ARIAD PASS – Takeda Oncology

www.takedaoncology.com

Supports access to Iclusig (Ponatinib) with co-pay assistance and case manager support.

Patient Services, Inc. (PSI)

www.patientservicesinc.org

Provides non-profit support for CML patients needing help with insurance premiums and medication costs.

RxAssist

www.rxassist.org

Lists pharmaceutical patient assistance programs (PAPs) for expensive medications.

NeedyMeds

www.needymeds.org

Comprehensive database for drug discount cards, co-pay help, and disease-specific aid.

Partnership for Prescription Assistance (PPARX)

www.pparx.org

Connects patients with low-cost and free medication programs across the U.S.

Patient Advocate Foundation

www.patientadvocate.org

Offers case management and financial aid to patients experiencing barriers to care or medical debt.


Travel & Lodging Help

Joe’s House

www.joeshouse.org

Find discounted lodging near hospitals for long-term treatment.

National Patient Travel Center

www.npstravel.org

Offers air travel assistance and coordination for patients who need to travel for cancer care.

Susan Lang Pay-It-Forward Program – LLS

www.lls.org

Helps cover travel costs for patients undergoing treatment or clinical trials for blood cancers.


Books That Help You Understand

  • The Emperor of All Maladies by Siddhartha Mukherjee

    A profound look into the history and science of cancer.

    Goodreads Link

  • 100 Questions & Answers About Leukemia by Edward D. Ball, MD

    Written in Q&A style, this guide is patient-friendly and informative.

    Amazon Link

  • Facing Cancer with Grace by Laura L. Koop

    Real-life stories from survivors and caregivers that bring hope and direction.

    Amazon Link


Podcasts for Support & Insight

  • Blood & Cancer by MDedge

    Covers hematologic oncology topics, including emerging AML/CML therapies.

    Listen

  • Cancer Straight Talk from MSK (Memorial Sloan Kettering)

    Oncologists and survivors talk honestly about the cancer journey.

    Listen

  • The Cancer Mavericks by OffScrip Media

    An inspiring series highlighting advocacy and breakthroughs in cancer care.

    Listen


Explore Clinical Trials

ClinicalTrials.gov

www.clinicaltrials.gov

Search global AML and CML clinical trials by diagnosis, drug, location, and more.

LLS Clinical Trial Support Center

www.lls.org/clinical-trials

Get matched with trials and speak directly with LLS nurse navigators for personalized support.

CureSearch

www.curesearch.org

Focused on pediatric leukemia trials and research for younger patients.

Cancer Research UK

www.cancerresearchuk.org

International clinical trial database with in-depth research for AML and CML.


Stay Informed with Research

PubMed (NIH)

https://pubmed.ncbi.nlm.nih.gov

Search peer-reviewed scientific publications on AML, CML, treatment regimens, and survival outcomes.

Try search terms like “AML treatment guidelines 2024” or “CML TKI therapy outcomes.”


❤️ You’re Not Alone

Whether you’re in the early stages of diagnosis or navigating long-term treatment, know that resources are available, and help is within reach. From financial aid to world-class education and emotional support, these organizations and tools exist to lighten your load and empower your next steps.